It’s Time Program
The It’s Time Program supports families who have recently received an SCD diagnosis or who are newly connecting with our organization. It is designed to help caregivers understand the condition, access resources, and feel confident navigating next steps.
Transitions Program
Our Transitions Program supports youth and young adults with Sickle Cell Disease (SCD) as they prepare to move from pediatric to adult care. This stage can be overwhelming, and our goal is to ensure every young person feels confident, informed, and supported throughout the process.
Program Goals
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Increase understanding of adult SCD care and patient expectations
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Build self-advocacy and healthcare decision-making skills
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Help youth understand insurance, appointments, and medication management
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Support families in navigating emotional, social, and logistical changes
What the Program Provides
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New family orientation and education and a social assessment to understand patient/family needs
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Clear guidance on treatment, pain management, and clinic schedules; Helping them understand Cure 4 The Kids Foundation as well as when to visit the hospital/when in crisis
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Support navigating insurance, school accommodations, and transportation
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Referrals to community partners and specialized resources like HTCNV, Nevada Chapter BDF, therapy, and more
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Emotional support for caregivers during the adjustment period
Who This Program Is For
Teens and young adults ages 14–24 who are preparing to transition from pediatric to adult SCD care.
Program Benefits
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Personalized resource navigation
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Early connection to support groups and parent mentors
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Ongoing check-ins with staff
What We Offer
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One-on-one transition readiness assessments
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Workshops on self-management and advocacy
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Guidance on selecting adult providers
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Peer discussions with young adults who have already transitioned
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Support for parents and caregivers